Addesa Family Update, May 2007
This morning, the Addesa's received a report from the doctors
saying that they ran a test again on Noah's brain and it indicates
he has great brain activity!! Praise God for his faithfulness
and mercy.
Last Updated: May 1, 2007 at 9:30am
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Noah is becoming visibly agitated by the different medical equipment
they have connected to him. Please pray for Pastor David and Lisa,
as they meet with the doctors today to discuss a different approach
to Noah's treatment. The family is encouraged by Noah's response,
although the doctors have sedated him once again. Please pray
that God would give the doctors wisdom.
Last Updated: May 2, 2007 at 10:50am
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Below is the link for the news coverage that was done for the
Prayer Service on Noah.
Wavy
News link
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Report from Pastor David:
Noah is about the same for the last two days. He opens his eyes
frequently, moves part of his upper body and, bites down on his
respirator tube when he is upset. The doctors are getting prepared
to transition him to no breathing assistance to see if he breathes
on his own. I had another consult with a doctor from out of town
and he echoed the same sentiment. Noah’s recovery may be
small or great, but either way it will take many months of marginal
progress to measure any real results. I cannot accept that in
my spirit.
Last night John Bevere called me and we talked a bit and then
he prayed a very powerful prayer for Noah. He reminded me of the
story in his book “Driven By Eternity” about his friend’s
son who was electrocuted in his bathtub and who was supposed to
be declared dead with the situation hopeless. The parents would
not accept that report. They cried out to God for His power to
intervene. That boy went on to college and had a 4.0 average with
zero effects from the tragedy. John asked me if I was looking
for that kind of miracle for Noah. I said “yes..absolutely”.
He then literally cried out to God for this same kind of miracle
to occur for Noah and I have firmly linked my agreement with his
"on earth as it is in heaven". I ask that you all stand
in agreement with me as well. From Lisa, Hannah, Emma most of
all Noah, I as well thank you all for praying and agreeing with
us in this manner. Love…Pastor David.
Last Updated: May 4, 2007 at 9:28am
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Report from Pastor David:
Today the Addesa family was hoping to see Noah off of his respirator
because of the continued incremental improvements we were seeing
in his eyes opening, slight movements in his feet and arms and
legs etc. Furthermore, Noah has shown steady improvements in heart
rate, blood pressure, body temp. and breathing rate. When the
doctors tried to wean him today, Noah was not able to breath on
his own. They re-inserted the respirator through his nose this
time to allow his mouth and throat to heal. Needless to say, we
are disappointed but not defeated. God must wake him up. That
remains the central issue. Noah's brain is not able to send the
correct impulses to his throat to synchronize his natural breathing
process. Medicine has no way to cure that. It must be The Father.
Please continue to pray that the power of God would flood Noah's
room and have him arise from his bed of affliction. Lisa, Hannah,
Emma & I are so grateful for the progress thus far. We are,
however, not satisfied until The Lord our God manifests His Glory
in that room and through it proclaims that the "Kingdom of
God is at hand". We love you and ask that you keep interceding.
Last Updated: May 7, 2007 at 9:15am
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Report from Pastor David:
For those of you who are local, The Virginia Pilot has an article
with a picture of Noah holding a Striper he caught last January.
It’s on Page B9 of the Hampton Roads section (Tuesday May
8th). I am grateful for their heart to publish it. Yesterday,
the doctors consulting on Noah’s case thought that a tracheotomy
(breathing tube in his throat) would relieve Noah of much of the
pain and discomfort of having all the tubes in his nose and down
his throat. It will also allow his throat and nasal passages to
heal.
The caveat, however, is that it usually takes about 10 days to
get the medical team together to do the procedure because of previously
scheduled surgeries of this nature. We agreed it would really
help Noah recover. It is only a small incision in the lower part
of the throat and takes about 35 minutes for the procedure. Again
the grace of God abounded. Within hours of telling us, the nurse
said, “We have made special arrangements to fit Noah in
tomorrow. (Tuesday) So the procedure is supposed to take place
about 3:00PM". We are very happy for this incredible favor
shown us by CHKD.
Noah continues to open his eyes frequently, have reoccurring facial
movements and swallowing and arm movements. All his vitals remain
good. He particularly loves to look at Lisa for extended periods
of time when she talks to him. Please keep praying that Noah wakes
up. The Father’s miracle could happen at any time! My love
to you all for your prayers and support.
Pilot Online Link
Last Updated: May 8, 2007 at 8:50am
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Tuesday was another good day for Noah. The doctors originally
blessed us with the news that they could perform Noah’s
tracheotomy immediately. (instead of the ten day anticipated schedule
delay) They also removed the feeding tube from his nose and inserted
a small tube directly into his stomach. Both surgical teams met
with Lisa and I and said that everything went fine. Noah received
a “two for one” blessing because he does not have
to have another surgical procedure concerning theses matters.
When I left last evening, it was a joy to see his beautiful face
unmasked again with the removal of all those tubes. When they
brought him back to the room for recovery from surgery, Emma and
I had the privilege of seeing him open his eyes wide and look
at us for a few minutes. Noah was resting well and we are waiting
for the Father to send His Word and awaken my son. Please continue
to contend for Noah’s miracle to be completed. Our love
to you all, Pastor David
P.S. Lisa was originally planning to preach the Mother’s
day message this week. She feels she can most effectively preach
that message by staying at the bedside of “her baby boy.”
I have the honor of being her back-up. I look forward to seeing
you all this Sunday and conveying to you what The Holy Spirit
has put in me to share with you.
Last Updated: May 9, 2007 at 10:00am
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Wednesday was a day of “recovery” prescribed by Noah’s
doctors who performed surgery on his tracheotomy and stomach feeding
tube. They kept him relatively immobile with morphine most of
the day to allow both areas to heal before he starts any significant
movement. All other vitals remain good. So I guess the best way
to say it in simple terms for Wednesday is “no news is good
news.” We expect today to have more activity as they decrease
his medication. Please keep praying for his day of awakening.
Lisa, Hannah and Emma are doing well. Thank you for your love
and concern, but mostly for your intercession. My love to you
all, Pastor David
Last Updated: May 10, 2007 at 9:20am
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Today was a good day for Noah. The doctors have decreased sedation
to a minimum to counteract the post op pain of his tracheostomy
and feeding tube. He did very well today in that regard, having
only occasional moments of discomfort. We had numerous times today
when his eyes were completely open and he gazed into our eyes.
Lisa and her sister Rachael had a few moments this afternoon when
they asked Noah to “blink once if you hear me” and
he blinked once. They repeated the command, except this time they
said, “blink twice if you can hear us” and he blinked
twice. There was an abundance of tears shed right after that encounter.
Tears of joy, I might add!
Please continue to pray for Noah, as we along with you, contend
for something that will bring glory to our King. Noah is not completely
awake yet, but have our complete trust that he will be well soon.
We love you and are eternally indebted to you all for your intercession
for our son, Pastor David
Last Updated: May 11, 2007 at 9:45am
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Today, I noted that it has been two weeks since our son, Noah,
was struck down by lightening. I need to pause for a moment, for
my sake, and reflect on the goodness and graciousness of our great
God and Savior Jesus Christ. I love Him more than my feeble language
can express. Noah was again frequently opening his eyes and at
times appears to focus on Lisa as if to tell her she is still
his Mama and he’s coming back. The doctors decided to try
to wean Noah completely off the respirator today because he has
consistently breathed “over” the respirator for two
days. I had to leave early to oversee a wedding rehearsal for
tomorrow, however, as of this moment (7:22PM) Noah has been breathing
on his own for about five hours! The respiratory therapist told
Lisa that on the first day they usually put them back on the respirator
for the night because they can regress during the normal sleep
cycle. Her last comment was that they might leave him off tonight
because his breathing is so strong.
I am weeping as I write this because I am so very grateful for
the thousands of you who have been interceding for Noah. God is
moving…please don’t stop. Lisa has been sleeping at
the hospital for two weeks now and has not been privy to these
updates. Would you please join with me in asking The Father to
give Lisa the greatest Mother’s Day gift of her life? I
believe every mother reading knows exactly what I mean.
One final encouraging moment to share as I close for the weekend;
about 3:30PM today, Noah began to slightly squeeze Lisa’s
hand. I was there for that one. The miracle continues. I love
you… Pastor David
Last Updated: May 11, 2007 at 11:55pm
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Today is Monday and for some, Mondays are a gloomy day. For the
Addesa household, it was a bright day. My son, Noah, was released
today from the 3rd floor ICU unit and transferred up to the 5th
floor of CHKD. It is called the “Transitional Unit.”
What that means is that Noah has demonstrated for about three
days now, the ability to breath without a ventilator and without
oxygen. He is breathing through his trach tube by himself.
His eyes are open much of the day and he has some facial expressions
at times that we have not been able to “translate.”
I say translate because he does them at particular times of provocation.
(like suctioning his trach tube or taking blood samples) We are
seeing continued movement in his limbs and head. He is not “awake”
yet, so please keep praying. Today is a good day for my son; I
am looking to his awakening by my Father in Heaven. Love…
Pastor David
Last Updated: May 14, 2007 at 9:00pm
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Today was Noah’s first full day in the Transition Unit.
First, two peripheral bylines to give you snapshots of the impact
Noah’s life is having. The chaplain on the 3rd floor of
CHKD told Lisa that one family who we interacted with was so moved
by “our courage and encouragement to them” (in spite
of Noah’s condition), that it led them to the place of saying
to the chaplain, “ I think we’ll give God a try again”.
Because of the strict confidentiality protocol the chaplain was
not able to tell us who it was. I have a suspicion, however, that
it was someone Lisa and I prayed with while Noah was in the PICU.
God is good.
Yesterday morning after our 5:00AM intercession at Harvest, one
of our young men came up to me and shared how Noah’s story
caused his buddy to open his heart to the Lord two weeks ago.
He went to our quarterly Men’s Encounter and God completely
“rocked his world.” Thank you Lord.
I have a suspicion that more of these stories are out there, though
I may be unaware of them at the moment. Nevertheless, I know more
than ever before in my life that Romans 8:28 is true when it says,
"And we know that all things work together for good to those
who love God, to those who are the called according to His purpose."
Noah continued to show increased movements, frequent eye opening,
and some actual “sighing” sounds when he yawns. I
would call it a good day. We continue to await his awakening from
the coma. Please keep praying. Love… Pastor David
Last Updated: May 16, 2007 at 12:00pm
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Yesterday I spoke metaphorically of “snapshots” of
things relating to Noah’s current circumstance. Today I
thought it would be appropriate for you to see two actual pictures
I took that give you a vivid contrast to what Noah looked like
the third day of his PICU admission, and how he looked today.
The first picture shows him on complete life support and partially
shows the chest burns. It is not very pleasant to look at because
Noah was in really bad shape.
The second picture I took this afternoon. It shows one of his
many moments when his eyes are open and he is looking at us. Even
though he “looks” awake, he is still considered comatose.

He is more readily moving his arms and is increasing his strength
resistance when I work with him. The miracle is not yet complete,
your intercession is still coveted by my family.
Daniel 10:12,13 "Then he said, 'Don’t be afraid, Daniel.
Since the first day you began to pray for understanding and to
humble yourself before your God, your request has been heard in
heaven. I have come in answer to your prayer. But for twenty-one
days the spirit prince of the kingdom of Persia blocked my way.'"
(NLT)
I want to encourage all of the people praying for Noah that sometimes
there is an onslaught of resistance from the powers of darkness
as it relates to the arrival of answered prayer. These dark angels
did everything in their power to keep Daniel from getting the
answer to his prayers. I believe there are elements of that going
on in the heavens over Noah right now. Please keep doing spiritual
warfare for my son. The battle continues, but Lord my God will
overthrow all that the enemy has tried to accomplish. Thank you
once again. Love… Pastor David
WVEC_LINK
Last Updated: May 17, 2007 at 8:35pm
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This Friday evening I am sitting down to share some further blessings
God has brought to us all. I am thankful to Him for His grace
and mercy. Lisa had a number of interesting interactions with
Noah today that took us to another level of expectation. There
were occasions when Lisa would “lock on” to Noah’s
eyes and ask him to voluntarily “open his mouth”.
He began to actually do that which brought great joy to her and
to us. On two occasions he took a deep breath and exhaled and
appeared to verbalize something that sounded like “mom”
over the trach tube. Pretty emotional moments to say the least.
The last two evenings Noah began to exhibit some strange symptoms
just before it was time for him to go to sleep for the night.
“Thalamic storming”: A term commonly used by nurses
caring for individuals who have had brain injuries. It means that
a person like Noah who has been struck by lightening can have
times when the brain is “firing” randomly and haphazardly.
They contort all over and almost act like they are having a seizure
though they are not. It’s quite bizarre and troubling to
see if you are mom and dad. Interestingly, Noah has been having
these episodes after I leave at night and it has been very hard
for Lisa to cope with. Sedation meds have helped calm him, however
tonight I decided to stay longer and see if I could be of benefit.
With good intentions I’m sure, the head nurse came by his
bed and said “we have changed his medications today to see
if that will help Noah during his “witching hour.”
Those of you who know me personally would understand that that
comment did not did sit well with me. I decided to stay at his
side tonight to see about this matter. As evening dawned, he started
to sweat and the storming began. I took his hand and began speaking
softly to him. Every time one of those thalamic storm waves would
roll over him, I would squeeze his hand and speak peace over him
in the natural and softly pray in the spirit into his ear. Furthermore
I kept quoting Romans 16:20 “The God of peace will soon
crush Satan under your feet.” (NLT) An hour went by before
I even realized it and Noah was sound asleep in his bed. My God
is good. Early this morning I awoke in the darkness of my room
and the Holy Spirit brought me understanding. He reminded me of
the storms Jesus calmed and that He still calms storms today…
regardless of what sophisticated names we give them J. My God
is amazing. Please keep praying till the miracle is complete.
Our love to you all… Pastor David
Last Updated: May 19, 2007 at 9:45pm
Next Update will be posted May 21, 2007 by 4:00pm.
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Entering our fourth week of this journey with my son Noah, I realized
today that I have acknowledged many moments of thanks to you the
prayer warriors and to my God for His grace and mercy. However,
with the other very public moments I have had with various media
coverage, some of my gratefulness never made it past the production
editor’s floor (meaning that it was cut out). So, I do want
to pause for one brief moment and express my deep and heartfelt
gratitude to the CHKD staff of doctors, nurses, and staff for
their amazing care for Noah. You guys are truly a blessing to
my son and my family! I have observed your care and concern for
my son in a manner that bespeaks of more than just great professionalism;
but also a “calling” to the hurting and injured kids
and families of Tidewater. You guys are champions in my book but
more importantly, in His book.
Today Lisa was sharing with us as a family how Noah is starting
to exhibit more familiar traits that identify him as the Noah
we remember. He is showing continued signs of awakening from his
coma. Lisa was sharing with me how he has actually begun to “move”
(while he is sleeping) with the grace and coordination he would
routinely exhibit if he were sleeping at home in his bed. For
those who have never observed a comatose patient over time, this
is truly amazing. Imagine for a moment the “Tin Man”
in the Wizard of Oz when his joints needed oil. His rigidity mimics
the movements of comatose patients. When Lisa woke up and saw
Noah moving his arm and legs as if nothing was wrong…well
she was astounded to say the least. She as said to me “David…
I believe he is getting close to waking up”. What else can
I say other than “Go God… go Noah… we are waiting
your return. Please keep interceding. Love… Pastor David
Last Updated: May 22, 2007 at 4:40am
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I was thinking today about Paul’s desires to see the Kingdom
of God continue to manifest in his ministry and yet he had occasions
when there were setbacks of sorts. We had one small one this morning
as it relates to Noah’s continuing improvement. Lisa’s
diligence (once again) thwarted a potential serious problem for
Noah. Monday evening Lisa noticed that his G-Tube (stomach feeding
tube) was oozing a substance that appeared to be his nutrients
as opposed to blood or other bodily secretions.
Finally she discussed it with the attending nurse and they agreed
to stop feeding Noah until it could be determined if his feeding
tube was secure. X-rays, in fact, showed that the tube had slipped
out of his stomach and was lodged between his stomach and his
abdominal wall. The staff concluded that they would have to return
to an IV drip for fluids until a surgeon was available to reset
Noah’s G-tube. The doctor who originally put Noah’s
G-tube was in today and told Lisa and I that “he has never
seen this happen before.” Hmm…I think I understand
why. When I hear statements like that, it tends to cause me to
look past the temporal and toward the eternal. Whatever the cause
of this unusual turn of events, I serve a God “calls those
things that are not as though they were.” We thank God for
Dr. Kelly. He is a good doctor and good surgeon. However we look
to the Great Physician for the ultimate remedy. He has the last
word on my son’s outcome!
Once again, great favor was granted to us to have Noah taken in
about 3:00PM today to have the tube replaced. Thank God we did
not have to wait for days. The “reset” went very well.
I left this evening with Noah still sleeping from the anesthesia
and the doctors and nurses are very confident that this would
solve the problems. Thank you Lord for your favor in my son’s
life. Please keep fighting for Noah’s awakening. Love…
Pastor David
Last Updated: May 23, 2007 at 8:00am
Next update will be posted May 24, 2007 by 4:00 p.m.
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Pastor David preached a profound and moving message this past
Sunday (May 20, 2007) as he reflected on the miracles and challenges
of the storm his family is facing. This message will not only
give you insight in how to pray for Noah and his family, but in
how to face the storm you may be personally experiencing. Just
follow this link to the message:
http://www.davidicdesign.com/category/harvest-podcasts/
Last Updated: May 23, 2007 at 9:19 a.m.
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Today was a challenging day for the Addesas. We have had seven
pastors visit Noah’s room to pray for him. That was fabulous.
However, my ignorance of the Creator’s process to heal my
son puts us at a considerable disadvantage. What I mean by that
is we believe in the divine intervention of God, yet I am not
sure what role we play in either facilitating that end or inhibiting
it. We had a number of consecutive days of progress with Noah,
but it appears that the displacement of his G-tube, the surgical
procedure to repair it and the subsequent discomfort of recovery
have somehow reversed this positive trend so that Noah has become
hypersensitive to environmental stimuli. The thalamic storming
began again but this time we are finding it very difficult to
calm Noah because of the multiplicity of sounds that go on around
him.
As an example, last night I would hold his hand and speak peacefully
to him and pray softly over him and the storms would subside and
then he would surge again upon the sudden sounds of people talking,
equipment beeping, visitors talking, nurses doing their rounds
and a plethora of other sound stimuli. Noah is currently in what
CHKD calls “Pod A.” Within these pods there are about
five kids and they are connected to other pods on that wing that
have a similar configuration. The drawback as it relates to Noah’s
specific case is that there are no walls or acoustic absorbers
to dampen the many sounds that go on moment to moment. They are
simply divided by curtains.
At this point, we are asking you to specifically pray that Noah
will be moved to a more private setting. My speculation is that
his brain is trying to rewire “itself” and the constant
introduction of sound stimuli triggers a storm. In simple terms
he is overloaded. I perceive his increased sensitivity as definite
progress, however his immediate surrounding needs to change to
enhance that. Please pray with us that he will be placed in the
exact room he needs to be in. I understand now more than ever
what the Psalmist meant when he said that we are “ fearfully
and wonderfully made”. We covet your continued intercession
to push the battle forward. Our love to you… Pastor David
Last Updated: May 24, 2007 at 8:20 a.m.
Next update will be posted May 25, 2007 by 4:00 p.m.
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Tomorrow will be week four of Noah’s journey back to us.
Time for us, has seemed to become suspended. The staff on the
5th Floor of CHKD attending to Noah have shown wonderful compassion
to us as we have shared our concerns from yesterday. The doctor
and nurses attending to my son are going to have a “team
meeting” with Lisa & I to discuss the entire strategy
from here. What a great blessing they are to us. Two significant
things occurred this afternoon.
Allow me to preface these by telling you that people who are in
coma can become very stiff and rigid if you do not regularly perform
PT via limb extensions and multiple stretching exercises. Lisa
and I have been doing this throughout the day. However, moving
Noah’s head from side to side has been a challenge because
his neck muscles seem unusually stiff most of the time. When you
try to move his head…you have to be very slow and deliberate.
Today I decided to concentrate more on messaging his upper back
and neck muscles (for some reason I just had this impression I
was supposed to). Before I left to come home, he started to move
his head (slowly) from side to side on his own. It was very very
encouraging. When I arrived home, Lisa called me and said”
David Noah is wiggling his toes… wow he’s really moving
his toes….oh wait…he’s moving his feet as well!”
She was bubbling over with joy and wonderment. You see Noah was
asleep while he was doing all of these amazing toe and leg movements.
They were not spasmodic or irregular, but very deliberate and
coordinated in their motion. Apparently when Noah is asleep, he
must ascend to some kind of twilight labyrinth and find the right
path to connect with the motions we have been asking of him for
weeks now. I have a sneaking suspicion that Noah is communicating
with angels in his sleep state and they are instructing him on
the next steps. Call me a fool…but it’s ok. I chose
to believe he is in the hands of my King. The One who “gives
His angels charge over thee” Please keep praying, your prayers
are activating the host of heaven for Noah. Love…David
Last Updated: May 25, 2007 at 10:34 a.m.
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It’s early Saturday morning and I wanted to pause and thank
those of you who prayed in last night’s prayer & intercession
vigil for Noah. I received an e-mail this morning letting me know
that it took place and I am deeply grateful for such a sacrifice.
Noah had a good day yesterday. His eyes were open all day with
frequent moments of apparent “scrutiny” he seems to
exhibit while responding to people, sounds, sights etc. We had
our team meeting with the doctor and nurses yesterday and it went
very well. They are trying hard to help reduce the noise level
around Noah during the evening hours. Beginning next week, we
have a goal to get him out of bed and into a wheel chair to facilitate
his recovery. (I would prefer that he simply stand up and walk
around…but that’s in the Father’s hands.) Lisa
said he slept well last night and she did as well. May this day
be his day of awakening. We continue to watch and pray until that
happens. Thank you for caring enough to walk this journey with
us. Love… Pastor David
P.S. The first picture below is of my son, Noah, with his best
friend, Noah, who loves him like a brother. He has been given
special permission from the CHKD (because of ages requirements)
to visit Noah any time he wants.
The second picture is to help you see what Noah looks like throughout
the day. He has a sparkle in his eye even though he has not awakened
yet. The tube you see on his trach is to provide humidity to his
breathing to replace what normally happens when we breathe through
our nose.
Last Updated: May 26, 2007 at 3:40 p.m.
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Monday is Memorial Day and I am grateful to the men and women
in uniform who paid the price for me to have the freedom we have.
Freedom is not free…and I for one will never take it for
granted. This is likewise a memorable weekend for the Addesa household.
Before leaving the hospital Saturday evening I said to Noah, “Hey
bud, I look forward to hearing you say good night dad like you
used to.” His eyes were locked on mine and in that moment
I perceived Noah actually understood me. So I said, “Noah,
you can start tonight if you want to… just start moving
your lips and something will come out.” I then proceeded
to move my mouth up and down as if I were saying something to
show him what I meant. I looked down and he was mimicking me.
My first thought was that maybe he was simply moving his mouth
spontaneously and I happened to glance down in that moment.
I began to encourage him to move his mouth up and down and to
allow his breath to speak some sounds. He continued to move his
mouth up and down and it became clear to me that Noah was really
trying to get some kind of sound out of his mouth. I repeated
the request a number of times and he would continue to take deep
breaths and move his mouth up and down. My family gathered on
that side of the bed because they sensed, along with me, that
Noah was trying to go to the next level. It was a time of tears
rolling down my cheeks on to his pillow. Since then we have heard
some “sighs” but no syllables yet. Nevertheless, I
am very encouraged that he is trying. Sunday Lisa said he was
actually swallowing and coughing on his own. Finally, it has been
a blessing to see him “follow” your movements across
the room with his eyes, but now he is actually moving his head
side to side. Again, unless you have been with a comatose person,
these responses seem insignificant. To us they are memorable and
marvelous.
Early Sunday morning before services, I was in my office and what
came to me was the story of Lazarus. Jesus allowed him to stay
in the tomb much longer than anyone would have liked. He then
showed up and called Lazarus back to life. Lazarus then had to
be literally “unwrapped” from his burial clothes by
his family and friends so he could walk and talk and go about
his life. I believe the Lord has brought Noah back in His time.
Your prayers and intercession are helping to “unwrap”
my son from his grave clothes. Thank you so very much for praying
for my son. Let’s keep unwrapping him until the job is finished.
Love… Pastor David
Last Updated: May 28, 2007 at 9:35 a.m.
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Today Noah went to the OR for the doctors to check, with a scope,
his larynx to see if there was/is any damage from the initial
two weeks of ICU respirator trauma. Many times the tubes inserted
into the airways cause tissue damage. These are necessary risks
to save lives. The procedure required mild sedation, but not general
anesthesia. The doctors came out and said that there is no scarring
or damage. Praise the Lord! They are now charting a strategy to
decannulation; the removal of his tracheotomy tube. They will
start by gradually reducing the size of the trach to wean him
off so that he can breathe over it and eventually remove it altogether.
This week we are supposed to try and get Noah in a wheel chair.
In anticipation of that, we electronically adjusted Noah’s
bed so that he was sitting in an upright position for a few hours.
He did well. It was really neat to see him sitting upright for
the first time in four weeks! Please keep up the fight for his
awakening with your intercession. Love… Pastor David
Last Updated: May 30, 2007 at 11:15 a.m.
Next update will be posted May 31, 2007 by 4:00 p.m.
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Some days depending on my obligations, I get to spend more time
with Noah than other days. Today I went in early and it was Noah
& I most of the day in order to give Lisa some extended time
away. It is never a sacrifice to be with my son, it is rather
a great blessing and honor. Today was the day the medical team
decided on two “upgrades” for Noah. The first was
an addition to his trach tube called a “talking tube”.
What that means is that they place an adaptor on top of Noah’s
trach which allows him to inhale through the tube but then there
is a valve that closes that forces him to exhale through his nose
and mouth. The head nurse placed it on his trach this morning
and said we would have to watch him for a while to see if he would
tolerate it. (It is another step in the process of removing the
tube all together.)
Noah was a champ again today. He had no negative reflex and met
the challenge with grace and aloofness. He just acted like it
was no big thing and started to breath, as he should through his
nose and mouth. What a joy! This addition allows him to “talk”
when he so desires. The next upgrade was slightly more radical.
The team decided to lift Noah out of his bed to see if he could
function in a wheel chair. When you have been in a bed for a month
that can present a number of challenges. Again Noah did very well.
Below you will see his first step “out of bed”. Unfortunately
because of Noah’s large size for an eleven year old, the
wheel chair was a bit too small to keep him in for any length
of time. They decided to let him stay for a few minutes and take
him out so they could send the chair down to the shop for significant
size adjustments. The ‘enhanced” chair was in his
room when I left tonight. What can I say other than thank you
my Lord. Thank you for interceding for Noah. Love…David
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Last Updated: May 31, 2007 at 9:44 a.m.
Next update will be posted June 1, 2007 by 4:00 p.m.